Regulating reproductive research: The emergence of ethical guidelines and committees
Project leader: Helena Tinnerholm Ljungberg
This project explores the emergence and institutionalization of medical-ethical research regulation and committees in Sweden, from the middle of the 1960s and onwards. The project is empirically focused on the Swedish medical corps and its self-regulating practices as well as on the ethical pre-review system of medical human research, and how they were discussed by researchers, politicians, and in the public debate in the 1960s and 1970s. Special attention is given to the ethical review process and debates surrounding reproductive research. The main research questions focus on how medical research was represented as an ethical problem, how solutions to these problems were articulated, and how specific values were produced and re-produced in the process.
Publications and presentations:
• (with Solveig Jülich), ”Från medicinskt avfall till rättighetsinnehavare: Framväxten av värdekonflikter kring aborterade foster i Sverige”, Tidskrift för genusvetenskap 40, no. 3–4, 2019, 29–50. (Title in transl.: "From medical waste to rights-holders: The emergence of value conflicts around aborted fetuses in Sweden").
• (with Per-Anders Svärd) “Lives worth living: Swedish debates about fetal and animal research in the 1970s”, paper presentation, (ISHPSSB) International society for the history, philosophy and social studies of biology, Oslo, Norway, July 12, 2019.
• “Regulating research: The origins and development of research ethics committees in Sweden, paper presentation, Research Ethics Committees: Origins, Development and Beyond, Uppsala University, Sweden May 28–29, 2019.
• “Regulating reproductive research: The emergence of ethical guidelines and committees in Sweden”, presentation at seminar organized by Feminist and Critical Studies in Politics, Stockholm University, Stockholm, Sweden, 1 December, 2017.